Project to support bereaved people with learning disabilities

Project to support bereaved people with learning disabilities

PAMIS is a registered charity working with people with profound and multiple learning disabilities (PMLD) and complex health care needs, their parents and carers and interested professionals. A pilot study was recently carried out by PAMIS and had identified the particular and unique needs of both people with PMLD and their carers in relation to levels of support for them when bereaved. As a result of these findings, funding to carry out work in relation to the topic of bereavement and loss was secured. The project will run over two years.

Need for the Project

• People with PMLD and their carers do not receive adequate support that

meets their specific need when they are bereaved.

• Accessible resources for people with PMLD are not available.

• Families/carers are not adequately supported when a person with PMLD, for

whom they care, dies.

Supporting People with PMLD

PAMIS will run workshops in Tayside and in Grampian, which will allow carers to share their experiences of bereavement in relation to the person with PMLD, for whom they care.

Supporting Parents and Carers

PAMIS will run workshops in Tayside and in Grampian, which will allow carers to share their experiences of bereavement. This will help us to better understand the unique needs of family carers whose lives have been committed to caring and understand and respond to the support needs of professional carers who have developed close relationships with someone who has PMLD and has died.

If you would like to share your experiences and views with us regarding bereavement and loss and how it affects people with PMLD and/or their parents, carers and professionals then please do get in touch with us. You can contact Hannah Young on 01382 384 942 or at: h.young@dundee.ac.uk