good life, good death, good grief

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Launch of the Scottish Compassionate Communities Toolkit

Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care have launched the Scottish Compassionate Communities Toolkit. The toolkit is a collection of resources for people wishing to make their local community more supportive of people going through difficult times that can come with death, dying, loss and care.

The toolkit brings together work from across Scotland and beyond, providing ideas to help people develop their own projects addressing local experiences of death, dying, loss and care.

The toolkit includes sections exploring...

Getting started

Some ideas on starting a new project and gathering support for local action from across the community.

Creating opportunities

How might you create opportunities for people to talk about, plan for, give support and receive support relating to ill health, death, dying and bereavement?

Encouraging supportive environments

How might you encourage institutions (eg schools and workplaces) and neighbourhoods to have cultures/structures/networks which enable people to give and receivesupport in the face of death, dying and bereavement?

Increasing knowledge and skills

How might you increase people's knowledge, skills and information, enabling them to respond to and support each other through the difficult times that can come with death,dying and bereavement?

The toolkit can be accessed here: Scottish Compassionate Communities Toolkit

End of Life Aid Skills for Everyone

Building comfort and confidence to support people through dying, death and bereavement.

The Scottish Partnership for Palliative Care is developing a public education course for anyone who wants to be able to support someone with issues they face relating to death, dying and bereavement.

The course is aimed at members of the public who want to increase their baseline knowledge of matters relating to dying and bereavement, and to build their confidence and comfort supporting others through these difficult times.

The course is still in development, but is expected to be structured around four modules each lasting two hours:

Module 1: An introduction to death in Scotland

An opportunity to grow more comfortable talking about death and dying, and explore common illnesses and patterns of decline. This module looks at the roles of different professionals and institutions and the responsibilities and limitations of Scotland’s health and social care system.

Module 2: Serious Illness and Frailty

Explore some common issues that can arise towards the end of life and some of the emotional issues that can affect someone who is dying. This module explores the emotional support a friend or family member can provide to someone who is dying. It also looks at what people can do to plan ahead to improve their end of life care experience.

Module 3: Realities of Caring and Dying

Learn about bodily changes that take place in the last few days and hours of life. This module covers common treatments and medications that someone might come across, and expectations relating to what these treatments can achieve. This module also looks at the practical support a friend or family member can provide to someone who is dying.

Module 4: Caring for the Carer

Think about some of the issues that can affect people who are spending a lot of time looking after someone else, and where to get more information, help and support. This module covers bereavement, emphasises the importance of self-care, and looks at how people can look after themselves and others they know who are carers.

The course is being developed by a Working Group, and a separate Reference Group with representation from a wide range of organisations is advising the SPPC on the management of the project.

There are plans to run a small pilot of the course in Autumn 2019, followed by further refinement and development of the course.

A In 2020 we’ll be looking for organisations and individuals interested in running End of Life Aid Skills (EASE) courses in their area. If this is something that may interest you, or you'd like to be kept informed of developments, please get in touch: rebecca@palliativecarescotland.org.uk

Unleashing Compassion Conference

Tickets are now on sale for Unleashing Compassion, a major national conference which will explore how to encourage open and supportive attitudes and behaviours relating to death, dying and bereavement in Scotland. It takes place at Renfield St Stephen's in Glasgow on 2 May.

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